Before Samuel Habib was diagnosed with a disability at age 1, the Habib family rarely thought about the inclusion of people with disabilities. Since then, they have advocated for Samuel’s inclusion nearly every day – in their schools, city, and even in their extended family. Now at 20 years old, Samuel is leading the advocacy charge for his own life. He is a student at his local community college in Concord, New Hampshire. In high school, Samuel was on the school yearbook staff, the school television station, and played “Unified Sports” track, basketball, and soccer. Samuel is working towards a career as a multi-media storyteller in film and other mediums. Yet he still faces challenges on many levels due to his rare GNAO1 neurodevelopmental disorder, including periodic seizures, movement disorders, hospitalizations, fatigue, and the inaccessible homes of his extended family and friends. Samuel and Dan Habib will share a short preview of their new work-in-progress film, the Disability Road Map (working title) and discuss how they have tried to build a culture of inclusion in their family, school district, and community, and plan for a full adult life as Samuel enters his 20’s.

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